About

It is said that, Multiple Sclerosis usually strikes people in the prime of their lives.  Here is my story… 

My Name is Kaycee Kiesz, I am 32 years old and I am in the prime of my life – Great Job, Amazing Friends, Supportive Family, and a Jam-Packed Social Calendar. 

For those of you who do not know me, it may surprise you…. that for the last five years I have been living with the daily struggles of Multiple Sclerosis. 

In December of 2001 at the age of 27… I lost vision in my left eye.  I remember it like it was yesterday:  I was at a holiday party with girlfriends and becoming dizzy, I had blurred vision.  I thought there was a problem with my contact.  The next day I woke up to darkness, so I made an eye appointment.  At the doctor’s office I was asked to place a patch over my right eye… desperately I tried to see as the doctor performed a couple of tests.  I remember calling my mother in tears… not knowing what was happening.

I am very grateful for my mom, who is an operating room nurse.  She was able to secure an MRI appointment for me the very next day.  I remember dropping off my MRI results to her at the hospital… and waiting for her to get home to take me to the neurologist that evening.  I remember her being the first person to tell me that I had Multiple Sclerosis. I remember the neurologist telling me about the lesions on my MRI and that there was no cause…there was no cure…

After the initial anger, grief and depression, I wanted to find out how I could help this cause.  Four years ago, I organized a team of about 50 walkers that raised nearly 10,000-dollars at the 2002 MS Walk.  In 2003 & 2004 the team of walkers grew to nearly 200 and raised over $30,000.  At the 2005 & 2006 MS walk, I personally raised close to $15,000 and the Starbucks MS Walk Team raised over $50,000 for the National MS Society to continue their work in the fight against MS.

TODAY… I accept that I am living with MS.  I give myself a shot three times a week to slow the progression of this disease.  I hope to live a long and great life and to touch as many people as possible along the way…with hopes that, TOMMOROW…we find a cure!

9 Comments

  1. Rachael Nuwash replied:

    Kaycee, you’re such an inspiration!

  2. Kristin Hesse replied:

    Thank you for everything you do, Kaycee! Looking forward to another successful MS Walk season!

    Cheers,
    Kristin

  3. Jill Anger replied:

    Kaycee,
    You are such an inspiration to those with MS. Being diagnosed with MS myself last year at the age of 24, I absolutely love hearing from those that have had similiar experiences. It’s definitely hard sometimes, but with people like you to keep us all in check–having MS means that we can make a difference in the lives of others! You rock! 🙂

    ~Jill

  4. Brandy Paster replied:

    Kaycee – It is wonderful to know there are other people out there going through what I’m going through and striving to be positive and make a profound difference. I was dx’d at 26 and have been living with ms for 3 years. I am a team captain as well and can’t wait to meet you at the walk!

  5. Lyn Laielli replied:

    Kaycee, you are SUCH an inspiration! I’ve been living with MS for 21 years, and as with you, find a great deal of support thru friends, family, and for me, past co-workers. MS caused me to leave my wonderful career a few years ago. But alas, I manage to bring all three groups together for the MS Walk every year. And the coolest part…so many of them are surprised to see they know each other, then bring more friends the next year!
    Keep up the good fight Kaycee!
    Lyn

  6. Cheryl Richardson replied:

    Kaycee,

    It was great to meet you earlier this week! It’s good and helpful to hear your story and advice on how you’ve made your team so fun and rewarding. I was diagnosed about 16 ½ years ago. After keeping it to myself the majority of that time, I have finally decided to step out, step up and actively do all I can to join this fight. MS is gonna be with me until there is a cure, so why not do more to help!? This is my first year having my own team, and I KNOW the walk is going to be excellent! I haven’t announced the fact that I have MS to the world, but so far, I’m comfortable with gradually telling more people. I have found that in general, people have been surprised, kind and supportive. That makes me glad I’ve shared what I thought was so personal, and it makes me want to reach out even more. Hey – I’ve joined the movement! Let’s all look forward!

  7. Sue Kautter replied:

    Kaycee~ Thanks for all the uplifting comments.
    This will be our team’s first walk. This is so exciting and I know we will have so much fun! It’s great to see and hear about stories like yours which inspire others to each do our part to raise money for research.
    Thank you! Sue Kautter ~ Holland America Line

  8. kaycee replied:

    Thank you all for your comments. I often feel like I am fighting this alone…but by joining the movement, I know that we all can make a difference.

    You can not do all the good the world needs, but the world needs all teh good you can do. ~ Anonymous

  9. Jaime replied:

    Kaycee,

    You are such an inspiration. I was diagnosed 3 years ago and have done the walk each year since my diagnosis. This is my first year putting a team together and I have 18 people on my team (Team MMSJ – Kennewick). I can’t imagine 50 people…you rock! I look forward to hearing more from you and how things are going. Take care of yourself.

    Jaime

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